Life-threatening neuromuscular disorders: Interest in palliative care for children and their families
Keywords: Pediatric palliative care; Quality of care; Hope; Spinal muscular atrophy type I; Duchenne muscular dystrophy; Soins palliatifs pédiatriques; Qualité des soins; Espoir; Amyotrophie spinale de type I; Myopathie de Duchenne;