Dementia at the Intersections: A unique case study exploring social location

Research exploring the experiences of persons living with dementia has been criticized for failing to situate individual experience in a broader socio-cultural context. In particular, little attention has been devoted to examining how social location shapes the subjective experiences and responses of persons with dementia. This paper examines how one woman's position as a younger, aboriginal woman of lower socio-economic status living with a same-sex partner, helped construct her experiences with dementia. Data for this unique case study are based on in-depth personal and family interviews and video-taped participant observation. Three themes dominated her story. First, receiving a diagnosis of dementia triggered this woman's desire to connect with her cultural heritage. Through this claiming of her cultural identity as an aboriginal woman, the dementia was reinterpreted as facilitating a closer connection with her ancestors and this released for her a sense of creativity, productivity and peacefulness. Second, the refusal of this woman to adopt a more conventional interpretation of dementia, compounded by her younger age and atypical presentation, resulted in a tendency by others to discount the impact of the dementia in her life. Finally, the lack of recognition afforded to her female partner increased her partner's isolation and created challenges for their relationship. This paper will focus on embedding this woman's lived experience within a broader socio-cultural context in order to demonstrate how aspects of one's identity and social location interact to construct one's subjective experience.