Developing an information booklet for parents and caregivers of children recovering from spinal fusion surgery

SummaryBackgroundThe home care of children following spinal fusion surgery can be a challenging experience for families. The literature identifies a need for better discharge information, specifically written information for families to take home.MethodA discharge informational booklet was developed based on the results of a qualitative study and following discussions with stakeholders. Families who recently made the transition home where involved in the development of the content and design of the booklet.ConclusionThe booklet is viewed as helpful by families preparing for discharge from the hospital and taking on a care-giving role at home. It also helps nursing staff anticipate issues families may face when home, thus encourages discussion of these issues with families prior to their hospital discharge. Further evaluation of the tool with a larger sample is indicated.