کد مقاله کد نشریه سال انتشار مقاله انگلیسی ترجمه فارسی نسخه تمام متن
2668287 1403740 2016 12 صفحه PDF سفارش دهید دانلود کنید
عنوان انگلیسی مقاله ISI
Parent Perspectives of Neonatal Intensive Care at the End-of-Life 1
ترجمه فارسی عنوان
دیدگاه پدر و مادر از مراقبت های ویژه نوزادان در پایان زندگی 1
کلمات کلیدی
مراقبت های ویژه نوزادان؛ مراقبت تسکینی کودکان؛ مراقبت پایان زندگی . سوگ و مقابله. استرس والدین
موضوعات مرتبط
علوم پزشکی و سلامت پزشکی و دندانپزشکی پریناتولوژی (پزشکی مادر و جنین)، طب اطفال و بهداشت کودک
چکیده انگلیسی


• Parent experiences surrounding end-of-life care in the NICU were explored.
• The opportunity to be a parent was important regardless of the infant's prognosis.
• NICU nurses played a critical role in facilitating parenting.
• Living with life-and-death decisions was an oscillating process for parents.
• There are areas for improvement in palliative and end-of-life care in the NICU.

This descriptive qualitative study explored parent experiences related to their infant's neonatal intensive care unit (NICU) hospitalization, end-of-life care, and palliative care consultation. “Life and death in the NICU environment" emerged as the primary theme with the following categories: ups and downs of parenting in the NICU, decision-making challenges in the NICU, and parent support. Parents encountered challenges with areas for improvement for end-of-life and palliative care in the NICU. Further research is necessary to understand barriers with integrating palliative care and curative care in the NICU, and how NICU care affects bereavement and coping outcomes after infant death.

ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Journal of Pediatric Nursing - Volume 31, Issue 5, September–October 2016, Pages 478–489
نویسندگان
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