کد مقاله کد نشریه سال انتشار مقاله انگلیسی نسخه تمام متن
2668444 1141008 2013 6 صفحه PDF دانلود رایگان
عنوان انگلیسی مقاله ISI
Strategies Used by Teens Growing Up in Families With Huntington Disease
موضوعات مرتبط
علوم پزشکی و سلامت پزشکی و دندانپزشکی پریناتولوژی (پزشکی مادر و جنین)، طب اطفال و بهداشت کودک
پیش نمایش صفحه اول مقاله
Strategies Used by Teens Growing Up in Families With Huntington Disease
چکیده انگلیسی

The purpose of this study was to identify helpfulness of strategies used by teens growing up in families with Huntington disease (HD). Forty-four participants responded to a mailed HD Family Survey–Teens Strategies. Strategies were those with strong positive correlation between use and perceived helpfulness, and those with negative or inverse relationships. Obtaining information, thinking about or doing something else, and actions on behalf of the parent with HD were rated as highest use and perceived helpfulness. Emotional suppression had high use but low helpfulness. Participants reported using numerous helpful strategies. Social support was often unavailable to help manage teen concerns.

ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Journal of Pediatric Nursing - Volume 28, Issue 5, September–October 2013, Pages 464–469
نویسندگان
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