Vêtements compressifs et syndrome d'Ehlers-Danlos. Étude multicentrique et prospective sur 49 personnes du handicap avec le Handitest

In people with Ehlers-Danlos, three symptoms are particularly disabling: pain (or rather the pain) diffuse, intense and resistant to treatment, fatigue and damage, often severe, of proprioception. Added to dyspnea and impaired cardiac and respiratory control, disconnected oxygen requirements associated with increased effort. We hypothesized that the pathophysiological mechanism of occurrence was, for all the events, the fact that characterizes this disease: the poor quality of connective tissue due to lack of collagen, has lost strength and elasticity that comes “blurring” or canceling the signals of sensors and exteroceptive and intero-, which it supports. It was this reasoning that gave us the idea of compressing the tissue involved for them to find conditions closer to those of physiology. We went to the lab's research society Thuasne whom we asked and who chose us to try the fabric of Cicatrex nature, already used to treat burn scars. A multicenter, prospective, 49 people with the syndrome of Ehlers-Danlos syndrome, has been undertaken with a three-month follow-up using the instrument for measuring disability Handitest. The results confirm the assumptions, since considerable improvements are observed in very high proportions of cases: 99% for proprioception in general, 96% for pain, 96 and 94% for dislocations and sprains.