Development and Preliminary Testing of a Scale to Assess Pain-Related Fear in Children and Adolescents

It is assumed that pain-related fear, a present response to an immediate danger or threat such as pain, plays a significant role in the experience of pediatric pain. However, there are no measures to adequately measure this construct in children and adolescents. The purpose of this study was to develop and test the psychometric properties of a scale to assess pain-related fear to be used with Catalan-speaking children and adolescents between 7- and 16-years-old. We initially developed a list of items that reflected the physiological, cognitive, and behavioral components of pain-related fear components. We also queried an international group of experts, and interviewed children and adolescents. After pilot testing the initial version with a sample of 10 children, we administered the questionnaire to a sample of schoolchildren (n = 273) and children from medical clinics (n = 164) through individual interviews. Additional information was also collected during the interview to study the psychometric properties of the scale. Ten days after the initial interview, participating schoolchildren were requested to answer the questionnaire again. Item analysis and exploratory factor analysis with data from the school sample produced 2 meaningful factors (namely, Fearful thoughts and Fearful physical feelings and behaviors). Findings also showed that the Pediatric Pain Fear Scale (total scale and the 2 subscales) was both reliable and valid. This scale could help researchers to gain a better understanding about the role of pain-related fear in children and adolescents and support clinical decision-making.PerspectiveThis article presents a new measure of fear associated with pain in children and adolescents. This measure could potentially help researchers to gain a better understanding about the role of pain-related fear in children and adolescents and support clinical decision-making.