The role of patient organisations in musculoskeletal care

Better integration of patient organisations with health-care has been called for in policy statements by for example, the World Health Organization. Our aim was to describe the role of patient organisations in musculoskeletal care. We suggest that their work could be divided into three different fields of activities, that is, member benefits to satisfy individual needs, raised awareness to create better conditions for people with disability and the promotion of research to improve prevention, care and find a definite cure. Some scientific work exists to support that people with musculoskeletal conditions perceive a delay in information about patient organisations, that simple leaflets are effective in promoting such contacts and that they result in improved health behaviours. Furthermore, patient organisations may assist in improving health-care providers' education and skills training, and also support advocacy in political and societal issues with consequences for health-care practice. Mutual support and collaboration are thus encouraged.