Involving Parents in Managing Their Child's Long-Term Condition-A Concept Synthesis of Family-Centered Care and Partnership-in-Care1

BackgroundFostering effective engagement, collaboration and empowerment are central to supporting parents caring for children with long-term conditions.MethodsA concept synthesis was undertaken to identify the shared antecedents and attributes underpinning models of family-centered care and partnership-in-care.ResultsThirty studies were reviewed; antecedents of models related to unclear roles, entrenched professional practices, and lack of guidelines supporting their implementation; with central attributes being building trust, listening to parent concerns and valuing parents' knowledge of their child.ConclusionThe key attributes are outlined in a practical framework of involvement which may promote parent-professional collaboration for families of children with long-term conditions.