کد مقاله کد نشریه سال انتشار مقاله انگلیسی نسخه تمام متن
6238711 1278901 2016 9 صفحه PDF دانلود رایگان
عنوان انگلیسی مقاله ISI
Health care experiences and perceptions among people with and without disabilities
ترجمه فارسی عنوان
تجارب و ادراکات مراقبت های بهداشتی در میان افراد دارای و بدون معلولیت
کلمات کلیدی
معلولیت، دسترسی به مراقبت، برقراری ارتباط بیمار و ارائه دهنده، موانع مراقبت بهداشتی، جوامع آنلاین،
موضوعات مرتبط
علوم پزشکی و سلامت پزشکی و دندانپزشکی سیاست های بهداشت و سلامت عمومی
چکیده انگلیسی

BackgroundLittle is known about health care experiences among people with and without disabilities.ObjectiveWe sought to explore perceptions of people with and without disabilities related to their health care experiences.MethodsNineteen persons with and without disabilities participated in one of four focus groups. Focus groups were conducted in the physical world in Milwaukee, WI and in the virtual world in Second Life® with Virtual Ability, a well-established community designed by and for people with a wide range of disabilities. A grounded theory methodology was employed to analyze focus group data. Inclusion of physical and virtual world focus groups enabled people with a wide range of disabilities to participate.ResultsWhile some participants described instances of receiving good care, many discussed numerous barriers. The main themes that emerged in focus groups among both persons with and without disabilities related to their health care experiences including poor coordination among providers; difficulties with insurance, finances, transportation and facilities; short duration of visits with physicians; inadequate information provision; feelings of being diminished and deflated; and self-advocacy as a tool. Transportation was a major concern for persons with disabilities influencing mobility. Persons with disabilities described particularly poignant experiences wherein they felt invisible or were viewed as incompetent.ConclusionsBoth persons with and without disabilities experienced challenges in obtaining high quality health care. However, persons with disabilities experienced specific challenges often related to their type of disability. Participants stressed the need for improving health care coordination and the importance of self-advocacy.

ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Disability and Health Journal - Volume 9, Issue 1, January 2016, Pages 74-82
نویسندگان
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