کد مقاله کد نشریه سال انتشار مقاله انگلیسی نسخه تمام متن
8734796 1590996 2018 32 صفحه PDF دانلود رایگان
عنوان انگلیسی مقاله ISI
Sickle cell disease: Translating clinical care to low-resource countries through international research collaborations
ترجمه فارسی عنوان
بیماری سلول سقط: انتقال مراقبت های بالینی به کشورهای کم منابع با استفاده از همکاری های پژوهشی بین المللی
کلمات کلیدی
سلامت جهانی، بیماری سلولی صرع، تحقیق همکاری، مشارکت شمال و جنوب،
موضوعات مرتبط
علوم پزشکی و سلامت پزشکی و دندانپزشکی هماتولوژی
چکیده انگلیسی
The vast majority of the world's population of children and adults with sickle cell disease (SCD) are born in low-resource settings, particularly in sub-Saharan Africa, the Caribbean, the Middle East, and India. As a result numerous well-established, cost-effective, and evidence-based strategies for managing SCD such as newborn screening, early education, vaccinations, screening for stroke prevention, and treatments with safe transfusions and hydroxyurea are often unavailable, leading to substantial morbidity and increased mortality. Collaborations between high-income countries and these low-resource settings (North-South partnerships) have been advocated, with the goal of improving clinical care. Based on directives promulgated by the World Health Organization, we have developed a strategy of developing prospective research programs that focus on training, capacity building, and local data collection. This strategy involves consideration of important guiding principles, full partnerships, proper planning, and financial issues before program launch, after which rigorous program management is required for full effect and long-term sustainability. Ultimately these collaborative research programs should help create national guidelines and lead to improved clinical care for all children and adults with SCD.
ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Seminars in Hematology - Volume 55, Issue 2, April 2018, Pages 102-112
نویسندگان
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