کد مقاله | کد نشریه | سال انتشار | مقاله انگلیسی | نسخه تمام متن |
---|---|---|---|---|
9301737 | 1246109 | 2005 | 6 صفحه PDF | دانلود رایگان |
عنوان انگلیسی مقاله ISI
Familial hypercholesterolemia: ethical, practical and psychological problems from the perspective of patients
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کلمات کلیدی
موضوعات مرتبط
علوم پزشکی و سلامت
پزشکی و دندانپزشکی
پزشکی و دندانپزشکی (عمومی)
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چکیده انگلیسی
The main aim of the study was to explore the extent to which familial hypercholesterolemia (FH) influences the life of the patients affected. The study employed a qualitative analysis of semi-structured interviews with 23 outpatients who were being treated following a diagnosis of heterozygous FH at a tertiary hospital in Göteborg, Sweden. Some interviewees reported concerns related to their medication and feelings of guilt when not complying with treatment recommendations. However, none of the respondents expressed sustained emotional distress or would have preferred to be ignorant of their diagnosis. Apart from being more observant about food intake, their awareness of FH did not appear to have had a substantial impact on their way of life. In fact, those who did not suffer from any other diseases generally regarded themselves as healthy. Discussing the genetic constitution with family members with whom they had close contact was natural, but informing distant family members was not.
ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Patient Education and Counseling - Volume 57, Issue 2, May 2005, Pages 162-167
Journal: Patient Education and Counseling - Volume 57, Issue 2, May 2005, Pages 162-167
نویسندگان
Anders Ã
gÃ¥rd, Ingrid Ã
gren Bolmsjö, Göran Hermerén, Jan Wahlstöm,