A trajectory towards partnership in care – Patient experiences of autonomy in intensive care: A qualitative study

SummaryObjectiveThe aim of this study was to describe and elucidate patient experiences of autonomy in an intensive care context from a caring perspective.BackgroundPatients in intensive care units (ICUs) are critically ill and in a dependent and vulnerable position. There is thus a risk of staff taking command not only of the patients’ vital functions but also of their decision-making.MethodsA qualitative design was selected. Individual interviews were conducted with 11 adult patients with an intensive care episode of two days or more at six Swedish ICUs. The data were analysed using Inductive Content Analysis.FindingsPatient autonomy in intensive care was shown to be ‘A trajectory towards partnership in care depending on state of health and mutual understanding’. It was experienced through acknowledged dependence, being recognised as a person, invited participation and becoming a co-partner in care.ConclusionPatients in need of intensive care wanted to be involved in making decisions about their care as this creates a trusting and healthy care environment. Greater awareness is required about the ICU patient not only being a passive care recipient but also an active agent and where involvement in decision-making and participation in care are crucial.