کد مقاله کد نشریه سال انتشار مقاله انگلیسی ترجمه فارسی نسخه تمام متن
2663733 1564344 2015 10 صفحه PDF سفارش دهید دانلود کنید
عنوان انگلیسی مقاله ISI
Family Functioning as a Constituent Aspect of a Child's Chronic Illness
ترجمه فارسی عنوان
خانواده به عنوان یک عامل مؤثر در یک بیماری مزمن کودک
کلمات کلیدی
موضوعات مرتبط
علوم پزشکی و سلامت پزشکی و دندانپزشکی پریناتولوژی (پزشکی مادر و جنین)، طب اطفال و بهداشت کودک
چکیده انگلیسی


• Improved medical care has expanded the lifespan of chronically ill children.
• This condition implies an enormous engagement of families and healthcare system.
• Family functioning is a constituent aspect of a child's chronic illness.
• Changes in family functioning may impact on the child's illness trajectory.

This study explored how family functioning may contribute to trace a child's illness trajectory. We conducted semi-structured interviews with 33 parents of children in care at a hospice in northern Italy. We also examined the medical records of the children, and interviewed the physician who cared for them. Data analysis was based on the grounded theory approach. Different illness progressions corresponded to the different ways with which families experienced the illness: possibility, focus on illness, denial, and anger. Clinical interventions should involve the whole family and take into account their role in the construction of illness trajectories.

ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Journal of Pediatric Nursing - Volume 30, Issue 6, November–December 2015, Pages e19–e28
نویسندگان
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