Building a Legacy for Children and Adolescents With Chronic Disease

Children and adolescents who undergo extensive health-related treatment benefit from sharing their experience. Here, we describe how one institution established a legacy program for patients during their chronic disease treatment and how their journeys were symbolized with the distribution of beads. The legacy bead program was designed to be individualized according to the patient's journey and treatment experiences. A bead program offers a concrete, tangible method for patients to share their treatment journeys while building legacies on which they can reflect.