کد مقاله | کد نشریه | سال انتشار | مقاله انگلیسی | نسخه تمام متن |
---|---|---|---|---|
2999328 | 1180284 | 2012 | 12 صفحه PDF | دانلود رایگان |
عنوان انگلیسی مقاله ISI
History of the Rochester Epidemiology Project: Half a Century of Medical Records Linkage in a US Population
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کلمات کلیدی
IRBNIHHIPAAICD - دفیبریلاتورهای کاردیوورتر کاشتنیInternational Classification of Diseases - طبقه بندی بین المللی بیماری هاHealth Insurance Portability and Accountability Act - قانون قابلیت انتقال و مسئولیت بیمه سلامتNIH, National Institutes of Health - مؤسسه ملی سلامتRep - هرزهinstitutional review board - هیئت بررسی نظارتRochester Epidemiology Project - پروژه اپیدمیولوژی روچستر
موضوعات مرتبط
علوم پزشکی و سلامت
پزشکی و دندانپزشکی
کاردیولوژی و پزشکی قلب و عروق
پیش نمایش صفحه اول مقاله
چکیده انگلیسی
The Rochester Epidemiology Project (REP) has maintained a comprehensive medical records linkage system for nearly half a century for almost all persons residing in Olmsted County, Minnesota. Herein, we provide a brief history of the REP before and after 1966, the year in which the REP was officially established. The key protagonists before 1966 were Henry Plummer, Mabel Root, and Joseph Berkson, who developed a medical records linkage system at Mayo Clinic. In 1966, Leonard Kurland established collaborative agreements with other local health care providers (hospitals, physician groups, and clinics [primarily Olmsted Medical Center]) to develop a medical records linkage system that covered the entire population of Olmsted County, and he obtained funding from the National Institutes of Health to support the new system. In 1997, L. Joseph Melton III addressed emerging concerns about the confidentiality of medical record information by introducing a broad patient research authorization as per Minnesota state law. We describe how the key protagonists of the REP have responded to challenges posed by evolving medical knowledge, information technology, and public expectation and policy. In addition, we provide a general description of the system; discuss issues of data quality, reliability, and validity; describe the research team structure; provide information about funding; and compare the REP with other medical information systems. The REP can serve as a model for the development of similar research infrastructures in the United States and worldwide.
ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Mayo Clinic Proceedings - Volume 87, Issue 12, December 2012, Pages 1202-1213
Journal: Mayo Clinic Proceedings - Volume 87, Issue 12, December 2012, Pages 1202-1213
نویسندگان
Walter A. MD, MPH, Barbara P. MD, MSc, Jennifer L. PhD, MPH, Brandon R. MS, L. Joseph MD, MPH,