کد مقاله کد نشریه سال انتشار مقاله انگلیسی نسخه تمام متن
3815926 1246111 2008 9 صفحه PDF دانلود رایگان
عنوان انگلیسی مقاله ISI
Childhood chronic-kidney-disease: A longitudinal-qualitative study of families learning to share management early in the trajectory
موضوعات مرتبط
علوم پزشکی و سلامت پزشکی و دندانپزشکی پزشکی و دندانپزشکی (عمومی)
پیش نمایش صفحه اول مقاله
Childhood chronic-kidney-disease: A longitudinal-qualitative study of families learning to share management early in the trajectory
چکیده انگلیسی

ObjectiveTo explore the ways families learn to share management during the early stages of childhood chronic-kidney-disease.MethodsThis longitudinal, descriptive study based on the tenets of grounded theory, aimed to derive meaning about family–professional interactions during shared management. Data were obtained from six newly referred families, four renal nurses, four paediatric nephrologists and one dietician through: 36 semi-structured interviews, 21 case-note reviews and four child/parent learning diaries.ResultsThree learning stages were identified: dependent (families’ understanding was superficial, they lacked underlying knowledge and were totally reliant on professional guidance); co-dependent (families engaged competently in management but still required extensive guidance); independent (families communicated effectively with staff and competently adjusted management within professionally defined parameters). Five families actively shared management from early in the trajectory and progressed to independent learning when, by mutual agreement, professional input to management gradually decreased. The remaining family adopted a passive approach to management, did not progress to independent learning and remained reliant on professional input.ConclusionsFamilies in this study demonstrated three learning stages in becoming competent at management. Future research is needed to investigate the ways professionals promote family competence early in the trajectory and the factors that can facilitate or hinder families’ progression to independent learning.

ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Patient Education and Counseling - Volume 73, Issue 2, November 2008, Pages 354–362
نویسندگان
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