کد مقاله | کد نشریه | سال انتشار | مقاله انگلیسی | نسخه تمام متن |
---|---|---|---|---|
4200853 | 1279378 | 2008 | 5 صفحه PDF | دانلود رایگان |
عنوان انگلیسی مقاله ISI
Ethical, Legal and Social Issues of Genetic Studies with African Immigrants as Research Subjects
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کلمات کلیدی
موضوعات مرتبط
علوم پزشکی و سلامت
پزشکی و دندانپزشکی
سیاست های بهداشت و سلامت عمومی
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چکیده انگلیسی
In our experience, some Sudanese immigrants have challenged the legality and ethics of genetic studies with profitmaking as an end. We have concluded that it is essential to educate African immigrant or any other non-English-speaking immigrant participants in research using lay language and graphic illustrations before obtaining consent. Cultural proficiency is important in gaining the trust of African immigrants; profit-sharing may encourage their participation in genetic research to benefit all; involvement of African immigrant community leaders in planning, delivery and evaluation using the community-based participatory research approach will facilitate healthcare promotion, health literacy education, as well as genetic research. It is crucial to address the ethical, legal and social implications of genetic studies with African immigrants as research subjects.
ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Journal of the National Medical Association - Volume 100, Issue 9, September 2008, Pages 1073-1077
Journal: Journal of the National Medical Association - Volume 100, Issue 9, September 2008, Pages 1073-1077
نویسندگان
Gordon MD, MS, Sade MD, MSPH, MBA, Gleb PhD, Cynthia PhD, Richard L. MD, Lynne E. MS, PhD,