کد مقاله کد نشریه سال انتشار مقاله انگلیسی نسخه تمام متن
4941130 1436627 2017 9 صفحه PDF دانلود رایگان
عنوان انگلیسی مقاله ISI
“Rare place where I feel normal”: Perceptions of a social support conference among parents of and people with Moebius syndrome
موضوعات مرتبط
علوم زیستی و بیوفناوری علم عصب شناسی علوم اعصاب رفتاری
پیش نمایش صفحه اول مقاله
“Rare place where I feel normal”: Perceptions of a social support conference among parents of and people with Moebius syndrome
چکیده انگلیسی
Being surrounded by others who share one's condition offers a unique opportunity for destigmatizing companionship support, which normalizes, reduces isolation, and promotes solidarity. Ways to increase facilitators and decrease barriers to accessing support for rare disorders should be investigated.
ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Research in Developmental Disabilities - Volume 64, May 2017, Pages 143-151
نویسندگان
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