کد مقاله | کد نشریه | سال انتشار | مقاله انگلیسی | نسخه تمام متن |
---|---|---|---|---|
5677724 | 1595661 | 2016 | 46 صفحه PDF | دانلود رایگان |
عنوان انگلیسی مقاله ISI
Harmonization of Databases: A Step for Advancing the Knowledge About Spinal Cord Injury
ترجمه فارسی عنوان
هماهنگ سازی پایگاه های داده: قدم برای پیشرفت دانش درباره آسیب نخاعی
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کلمات کلیدی
CDESCIMSSCI/DSpinal cord injuries - آسیب طناب نخاعیSpinal cord injury - آسیب نخاعیVeterans Administration - اداره جانبازانDatabase - بانک اطلاعاتی، دادِگان یا دِیتابِیسRehabilitation - توانبخشیSpinal Cord Injury Model Systems - سیستم های مدل آسیب دیدگی نخاعیNINDS - شبهاsci - علمیcommon data element - عنصر داده مشترکDataset - مجموعه دادهNational Institute of Neurological Disorders and Stroke - موسسه ملی اختلالات عصبی و سکته مغزی
موضوعات مرتبط
علوم پزشکی و سلامت
پزشکی و دندانپزشکی
پزشکی و دندانپزشکی (عمومی)
چکیده انگلیسی
The objectives of this article are to (1) provide an overview of existing spinal cord injury (SCI) clinical research databases-their purposes, characteristics, and accessibility to users; and (2) present a vision for future collaborations required for cross-cutting research in SCI. This vision highlights the need for validated and relevant data for longitudinal clinical trials and observational and epidemiologic SCI-related studies. Three existing SCI clinical research databases/registries are reviewed and summarized with regard to current formats, collection methods, and uses, including major strengths and weaknesses. Efforts to provide a uniform approach to data collection are also reviewed. The databases reviewed offer different approaches to capture important clinical information on SCI. They vary on size, purpose, data points, inclusion of standard outcomes, and technical requirements. Each presents with a set of limitations including lack of population data and lack of a common platform for data comparisons and exchanges. It is clear that numerous issues need to be considered when planning to establish common ways of collecting data through data sets or patient registries, ranging from a carefully crafted implementation plan that lists purposes, cost, resources required, and policies to guide such development to establishing a framework for dissemination of data and findings. For the present, taking advantage of the vast but different data already collected over many decades may require a variety of statistical skills and epidemiologic techniques. Ultimately, our ability to speak the same language with regard to variables and assessment tools will facilitate international collaborations and enhance comparability, data pooling, and the ability to generalize findings to a broader population.
ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Archives of Physical Medicine and Rehabilitation - Volume 97, Issue 10, October 2016, Pages 1805-1818
Journal: Archives of Physical Medicine and Rehabilitation - Volume 97, Issue 10, October 2016, Pages 1805-1818
نویسندگان
Susan PhD, Denise PhD, Fin MD, PhD, Stephen MD, Yuying MD, PhD, Sophia PhD, Lyn B. PhD, Robert G. MBBCh, MS, Vanessa K. PT, PhD, Philip PhD,