A participatory study of teenagers and young adults views on access and participation in cancer research

- We examined young people's views on access to and participation in cancer research.
- We explored if access to research should be at the discretion of healthcare professionals.
- Young people felt it was their human right to be informed of all available research.
- Allied healthcare professionals should be involved in recruitment to low risk studies.
- Our study supports the concept that young people are willing to take part in research.

PurposeThe purpose of this study was to elicit young people's views on access and participation in cancer research.MethodsEight young people aged 18-25 years with a previous cancer diagnosis aged 15-24 participated in a one day workshop utilising participatory methodology. The workshop consisted of four exercises: role play/scene setting; focus group examining thoughts and opinions of research access and participation; individual reflection on access to different types of research; and creative interpretation of the workshop. Further consultation with 222 young people with cancer was conducted using an electronic survey.ResultsThree themes emerged:
- Patient choice: Young people thought it was their right to know all options about available research. Without knowledge of all available studies they would be unable to make an informed choice about participation.
- Role of healthcare professionals as facilitators/barriers: Young people suggested non-clinical healthcare professionals such as social workers and youth support coordinators may be more suited to approaching young people about participation in psychosocial and health services research.
- Value of the research: The what, when and how information was delivered was key in relaying the value of the study and assisting young people in their decision to participate.Further consultation showed approximately 70% wanted to find out about all available research. However, one third trusted healthcare professionals to decide which research studies to inform them of.ConclusionEffective ways to support healthcare professionals approaching vulnerable populations about research are needed to ensure young people are empowered to make informed choices about research participation.