کد مقاله کد نشریه سال انتشار مقاله انگلیسی نسخه تمام متن
6240891 1280442 2014 8 صفحه PDF دانلود رایگان
عنوان انگلیسی مقاله ISI
Long-term follow-up of cystic fibrosis newborn screening: Psychosocial functioning of adolescents and young adults
ترجمه فارسی عنوان
پیگیری طولانی مدت غربالگری نوزادان فیبروز کیستی: عملکرد روحی اجتماعی نوجوانان و بزرگسالان جوان
موضوعات مرتبط
علوم پزشکی و سلامت پزشکی و دندانپزشکی پزشکی ریوی و تنفسی
چکیده انگلیسی

BackgroundLong-term psychosocial outcomes of cystic fibrosis (CF) patients diagnosed through newborn screening remain unknown.MethodsThis cross-sectional study compared three groups of youths (16 to 22 years): CF patients diagnosed through NBS (CF-NBS, n = 13), CF patients diagnosed through standard practice (CF-SP, n = 26) and healthy peers (H, n = 42), plus 72 of their parents. We hypothesized that adolescent psychological functioning would be mediated by parent depression and quality of parent-child communication and cohesiveness.ResultsA path analysis showed significantly more depression among CF-NBS group parents (p = .006-.008). Parent-child cohesiveness was related to communication (p < .001). Cohesiveness and communication were associated with youth Internalizing Problems (p = .037, p = .009), Emotional Symptoms (p = 0.018, p = 0.022), and Personal Adjustment (communication only, p = 0.009). Parent depression was related to youth Personal Adjustment (p = 0.022).ConclusionsCF patients report psychosocial function similar to healthy peers. Parents of children diagnosed with CF through NBS may be at risk for depressive symptoms when their children reach adolescence.

ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Journal of Cystic Fibrosis - Volume 13, Issue 2, March 2014, Pages 227-234
نویسندگان
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