کد مقاله کد نشریه سال انتشار مقاله انگلیسی نسخه تمام متن
10317120 621840 2014 9 صفحه PDF دانلود رایگان
عنوان انگلیسی مقاله ISI
Health communication: A pilot study comparing perceptions of women with and without high functioning autism spectrum disorder
ترجمه فارسی عنوان
ارتباطات سلامت: یک مطالعه آزمایشی در مقایسه با ادراکات زنان با و بدون اختلال طیف عملکرد اوتیسم بالا
کلمات کلیدی
اوتیسم عملکردی بالا، ارتباطات، مراقبت های بهداشتی، استقامت، زنان،
موضوعات مرتبط
علوم زیستی و بیوفناوری علم عصب شناسی علوم اعصاب رفتاری
چکیده انگلیسی
Research indicates significant health disparities for individuals with autism. Insight into characteristic sensory, cognitive, communication, social, emotional, and behavioural challenges that may influence health communication for patients with autism is vital to address potential disparities. Women with high functioning autism spectrum disorder (ASD) may have specific healthcare needs, and are likely to independently represent themselves and others in healthcare. A pilot study compared perceptions of healthcare experiences for women with and without ASD using on-line survey based on characteristics of ASD likely to influence healthcare. Fifty-eight adult female participants (32 with ASD diagnosis, 26 without ASD diagnosis) were recruited on-line from autism support organisations. Perceptions measured included self-reporting of pain and symptoms, healthcare seeking behaviours, the influence of emotional distress, sensory and social anxiety, maternity experiences, and the influence of autistic status disclosure. Results partially support the hypothesis that ASD women experience greater healthcare challenges. Women with ASD reported greater challenges in healthcare anxiety, communication under emotional distress, anxiety relating to waiting rooms, support during pregnancy, and communication during childbirth. Self-disclosure of diagnostic status and lack of ASD awareness by healthcare providers rated as highly problematic. Results offer detailed insight into healthcare communication and disparities for women with ASD.
ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Research in Autism Spectrum Disorders - Volume 8, Issue 12, December 2014, Pages 1713-1721
نویسندگان
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