Community Survey of Carer's: Individual epilepsy guidelines (IEG) for rescue medication

ObjectiveTo evaluate the effectiveness and viability of individual epilepsy guidelines as a user-friendly tool for carers of people with epilepsy and learning disabilities. In this paper the term carer refers to family carers and support workers.MethodA retrospective survey questionnaire designed to ascertain the effectiveness and feasibility of individual epilepsy guidelines as a user-friendly tool. This was evaluated for examining clinical practice improvements and service delivery.Results44 questionnaires were mailed to carers who were supporting individuals with epilepsy. There was an overall response of 42(96%).ConclusionThis survey indicates that the IEG was a useful resource assisting carers with the management of emergency seizure events in the community.