The social and economic impacts of epilepsy on women in Nigeria

BackgroundPersons with epilepsy in sub-Saharan Africa experience stigma and social marginalization. There is paucity of data on the social and economic impacts of epilepsy in these patients and in particular, groups like women. We sought to determine the social and economic impacts of epilepsy on Nigerian women and especially how it affects their treatment and outcomes.MethodsWe carried out a cross-sectional survey of 63 women with epilepsy (WWE) and 69 controls matched for age, social status and site of care. A structured questionnaire was used to document information on demographic characteristics, education, employment status, economic status, health care use, personal safety and perceived stigma. The data were collated and analyzed with SPSS version 15.ResultsUnemployment, fewer years of formal education, lower marriage rates and higher stigma scores were more frequent among WWE than controls. Physical and sexual abuse with transactional sex was also reported among WWE. We also noted poorer environmental and housing conditions and lower mean personal and household incomes among WWE compared to the control group.ConclusionWWE in this sample from Nigeria have worse social and economic status when compared with women with other non-stigmatized chronic medical conditions.

► Women with epilepsy had lower economic status than other women without epilepsy. ► Women with epilepsy had worse psychosocial status than the controls. ► Women with epilepsy face high rate of stigma.