Revisión narrativa sobre la calidad de vida relacionada con la salud en personas con esclerosis lateral amiotrófica

The incorporation of non-oncological and neurodegenerative diseases has been promoted in Palliative Care for years. Amyotrophic Lateral Sclerosis (ALS) causes a considerable impact on patients' lives. For this reason the aim of this study is to establish health-related quality of life in people with ALS. A narrative review of the last ten years was performed from different databases: Cochrane, Cinahl, Pubmed, PsycInfo and Dialnet. The search keywords used were: «amyotrophic lateral sclerosis» and «health related quality of life» (HRQL). After applying the selection criteria, we found a total of nine articles. The investigators used the indications of the «US Agency of Health Research and Quality» to analyse the evidence from the articles. The results were then discussed and grouped into three key subject areas: the importance of the emotional, physical and social needs of ALS patients; caregiver presence and the the patients' HRQL; and coping mechanisms that can help HRQL. The physical dimension had the pooreste HRQL outcomes, but because the social and emotional dimensions were less significantly affected, overall HRQL score remained stable. Patient's family and environment are very important for their care.