کد مقاله کد نشریه سال انتشار مقاله انگلیسی نسخه تمام متن
3176245 1200254 2014 9 صفحه PDF دانلود رایگان
عنوان انگلیسی مقاله ISI
The development and psychometric assessment of a questionnaire to assess sleep and daily troubles in parents of children and young adults with severe psychomotor impairment
ترجمه فارسی عنوان
ارزیابی توسعه و روان سنجی یک پرسشنامه برای ارزیابی مشکلات خواب و روزانه در والدین کودکان و نوجوانان مبتلا به اختلال روانگردان شدید
کلمات کلیدی
غربالگری، اختلالات خواب، کودکان مبتلا به اختلال روانگردان شدید، اختلال والدین، پرسشنامه والدین، اعتبار، میزبان
موضوعات مرتبط
علوم زیستی و بیوفناوری علم عصب شناسی عصب شناسی
چکیده انگلیسی

BackgroundChildren with severe psychomotor impairment (SPMI) often experience sleep disturbances that severely distress both the child and his or her parents. Validated questionnaires for the assessment of parents’ distress related to their child’s sleep disturbances are lacking.MethodsWe developed and validated a new questionnaire, the HOST (holistic assessment of sleep and daily troubles in parents of children with SPMI) to assess the effect of the sleep disturbances in children with SPMI on their parents. The questionnaire was developed based on published data and expert opinion, and it was refined via direct consultation with affected parents. Its psychometric characteristics were assessed in a sample of parents of 214 children with SPMI. It was retested using a random subsample of the participants.ResultsExplorative factor analysis revealed that the HOST was composed of four scales. Fit indices, item analysis, and convergent validity (coherence with preexisting instruments of sleep disturbances and health status) were adequate. Retest analysis (n = 62) revealed high stability of the HOST questionnaire and adequate replication validity.ConclusionSleep-related difficulties significantly impact the sociomedical characteristics of the parents of children with complex neurologic diseases. Typically, parents are severely affected in various aspects of daily life (i.e., medical health, social life, professional life). The HOST proved to be a valid, reliable and economical assessment tool of sleep-related difficulties in parents and relatives of children with SPMI. The HOST is capable of identifying individuals and specific areas requiring intervention.

ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Sleep Medicine - Volume 15, Issue 2, February 2014, Pages 219–227
نویسندگان
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