The health care journeys experienced by people with epilepsy in Ireland: What are the implications for future service reform and development?

► A unique interpretation of epilepsy care processes is offered from the patient's perspective. ► Significant unmet patient needs and epilepsy care deficits from the patient's perspective are demonstrated. ► Research should explore why autonomy is sometimes abdicated to clinicians for care of people with epilepsy. ► More understanding of patient expectations is required to inform service reform.