Compétence des familles en soins palliatifs pédiatriques

In general, a huge number of different actors and caregivers are involved in pediatric palliative care and in particular when a child has multiple disabilities. While each actor has an area of competence, that of the family is the most difficult to make exist and to acknowledge. In this article, we want to share our vision, with a critical look on the caregivers' postures and by going beyond the usual perception attributed to the families. We first establish the asymmetry and the different ways of thinking of caregivers and the families. Furthermore, we develop various family skills and their evolution during the often-long period of paediatric palliative care. The recognition of families' various competences increases their development, but it also facilitates the collaboration between caregivers and families and therefore paediatric palliative care.